Blood Like Glass, Heart Like Iron: My Triple-Diagnosis Journey
Blood Like Glass, Heart Like Iron: My Triple-Diagnosis Journey Eleven years ago today, my world shifted. It was the day I learned that my son and I shared more than just a last name and a stubborn streak—we shared a rare genetic blood disorder called Hereditary Elliptocytosis (HE) . What is HE? For most people, red blood cells are shaped like flexible discs. For us, they are shaped like ovals or cigars. The Good News: For many, it’s a silent passenger that causes little to no trouble. The Reality: For about 5–20% of us, those odd-shaped cells break down (hemolysis), leading to things like jaundice, gallstones, and an enlarged spleen. My son has a mild case; he sees his hematologist once a year, and we are so grateful for that. But my journey has been a bit more... complicated. The Battle of the Spleen I remember February 27, 2015, vividly. My spleen had enlarged to 15cm . My hematologist discussed removing it, but at that time, the risks were simply too high. That was the turn...